I made it to day #2. Although I'm quickly realizing this might not be an everyday thing. I'd definitely like it to be, but we will see. I find it quite therapeutic actually.
Reece saw his cardiologist today. Good and bad came from it. Bad that things haven't gotten any better. But good because things haven't gotten worse. They have remained stable. Thank you, Lord. I'm so thankful for Boston Children's Hospital and for the miracles that will happen there. Here's a look at our little cutie waiting to see Dr. Nisha. I always knew when Matt and I had kids, they would have a lot of hair. But boy oh boy. His hair just cracks me up. He's already had one haircut. I think #2 is quickly approaching.
Reece saw his cardiologist today. Good and bad came from it. Bad that things haven't gotten any better. But good because things haven't gotten worse. They have remained stable. Thank you, Lord. I'm so thankful for Boston Children's Hospital and for the miracles that will happen there. Here's a look at our little cutie waiting to see Dr. Nisha. I always knew when Matt and I had kids, they would have a lot of hair. But boy oh boy. His hair just cracks me up. He's already had one haircut. I think #2 is quickly approaching.
I often hear people say ... "Enjoy life. Tell your loved ones how much they mean to you. Hug them. Kiss them. Hold them close. Because we have no idea what tomorrow will bring."
Just the other day I had a conversation with a co-worker who tragically lost his wife in a fatal car accident the day after Reece's open heart surgery in December. While he was fixing my computer, we started talking about life. And how precious it is. We've obviously been reminded of that yet again after the events in Boston on Monday.
I built up the courage to ask him, "How do you do it? How do you go on?" And, ironically, his response was the same as mine when people say, "I just don't know how you do it. How do you stay so positive when you're experiencing such sadness and fear." He said, "You know, I just get up, get dressed, go to work, and go on. When you don't have any other choice, you just do it." And that's always been my response. "What other choice do I have? We won't give up. And we continue to move forward."
But when so many take life for granted, I'm constantly reminded how precious it is. I KNOW we must live life to the fullest. I KNOW to hold on to my loved ones and savor each moment. I KNOW to hold my son close and tell him how much I love him and that he has brought so much joy into my life. I KNOW. And I know because I am constantly reminded.
At 6 a.m, 2 p.m., 6 p.m., and 10 p.m. when I give Reece all his medicine. I'M REMINDED.
When I change his diaper and it's a habit to grab the stethoscope and listen to his heart. I'M REMINDED.
As people pass by Reece and stare and whisper about his feeding tube. I'M REMINDED.
Every couple of weeks when Matt and I have to replace his feeding tube on our own. I'M REMINDED.
At every bath when I see his scars. I'M REMINDED.
When I see other kids Reece's age playing in a way Reece cannot. I'M REMINDED.
As I pray over him sleeping every night. I'M REMINDED.
I'm reminded of how special and precious this life is. No. We don't know what the future holds for Reece. Or for any of us for that matter. Maybe more important than being reminded of living each day to its fullest and loving as if we would not see another day? Being REMINDED of thankfulness. Every day. I'M REMINDED.
Today's devotional says this: I am training you in steadiness. Too many things interrupt your awareness of Me. I know that you live in a world of sight and sound, but you must not be a slave to those stimuli. Awareness of Me can continue in all circumstances, no matter what happens. This is the steadiness I desire for you.
Every day. Every moment. I'M REMINDED.
Just the other day I had a conversation with a co-worker who tragically lost his wife in a fatal car accident the day after Reece's open heart surgery in December. While he was fixing my computer, we started talking about life. And how precious it is. We've obviously been reminded of that yet again after the events in Boston on Monday.
I built up the courage to ask him, "How do you do it? How do you go on?" And, ironically, his response was the same as mine when people say, "I just don't know how you do it. How do you stay so positive when you're experiencing such sadness and fear." He said, "You know, I just get up, get dressed, go to work, and go on. When you don't have any other choice, you just do it." And that's always been my response. "What other choice do I have? We won't give up. And we continue to move forward."
But when so many take life for granted, I'm constantly reminded how precious it is. I KNOW we must live life to the fullest. I KNOW to hold on to my loved ones and savor each moment. I KNOW to hold my son close and tell him how much I love him and that he has brought so much joy into my life. I KNOW. And I know because I am constantly reminded.
At 6 a.m, 2 p.m., 6 p.m., and 10 p.m. when I give Reece all his medicine. I'M REMINDED.
When I change his diaper and it's a habit to grab the stethoscope and listen to his heart. I'M REMINDED.
As people pass by Reece and stare and whisper about his feeding tube. I'M REMINDED.
Every couple of weeks when Matt and I have to replace his feeding tube on our own. I'M REMINDED.
At every bath when I see his scars. I'M REMINDED.
When I see other kids Reece's age playing in a way Reece cannot. I'M REMINDED.
As I pray over him sleeping every night. I'M REMINDED.
I'm reminded of how special and precious this life is. No. We don't know what the future holds for Reece. Or for any of us for that matter. Maybe more important than being reminded of living each day to its fullest and loving as if we would not see another day? Being REMINDED of thankfulness. Every day. I'M REMINDED.
Today's devotional says this: I am training you in steadiness. Too many things interrupt your awareness of Me. I know that you live in a world of sight and sound, but you must not be a slave to those stimuli. Awareness of Me can continue in all circumstances, no matter what happens. This is the steadiness I desire for you.
Every day. Every moment. I'M REMINDED.